Friday, May 24, 2013

Kure Bound

It's become a tradition - the boys dress like superheroes to kick off the holiday weekend :)



End of the Line

Another sign we're a house full of big boys :(. I've been packing both boys' up for vacation in this small duffle bag for the past five years. I do believe this is the last time that's going to work. Onwards and upwards to individual bags! I feel a visit to LL Bean.com coming on...

Tuesday, May 21, 2013

BLU's Testing

This probably isn't necessary but I find it interesting so here you go.  We thought Blake was going to squeeze under the genetic radar and escape having allergies but he developed them this year and has really been complaining so we took him in to see Dr. Aarons at Carolina Allergy and Asthma for testing today.  Dr. Aarons is awesome - he treated Devlyn when he was 3 and immediately got his allergies under control which was quite an accomplishment considering how bad they were at the time.  I was not expecting Blake's results to be anything like they turned out b/c he really just started having problems in the last three months or so.  Dr. Aarons was too.  Blake is pretty much off the charts allergic to trees just like D and regular allergic to grasses & weeds.  His tine test reacted so quickly we were done and out of there in 40 minutes.  They didn't even let the test finish.  To give some perspective - a positive for a histamine is a pseudopod (bump) measuring 2mm x 2mm.  Blake's, for white oak measured 19mm x 11mm, hickory 13mm x 6mm, etc.  We got the right prescription mix and Blake will be good to go from here on out.  The best part?  He's not allergic to Annie - we thought he was.  She's probably just covered in pollen from being outside.

Lastly, we completed the next step in county testing for his possible speech therapy yesterday.  The speech therapist agreed that he qualifies for the next step which is observation in his surroundings (at preschool) and further evaluation.  We were concerned he wouldn't b/c at the last appt they told us he was borderline.  With any luck that will be the last step, he'll be referred for treatment and we'll finally get to the part where he actually gets professional help with his pronunciation.  Watching the tricks this speech therapist used to get him to work on his sounds was really cool.  So interesting to watch her successfully elicit the same responses from him that I've been trying to coax out for months with no luck!

Allergy Test Beginning
 
Allergy Test End (after Cortisone cream application)
 

Spring School Pics 2013 / 3 yr old class Soapstone & End of 1st Grade Sycamore Creek




 
Love Blake's expression in the class pic - always the ham : )  I personally think Devlyn looks like a teenager, comparatively.

Monday, May 20, 2013

Weebsie's Spring 2013 School Pics

Easily my favorite school pics ever.  First time I ordered prints of both poses.  #1 Happy, #2 Angelic (ha!)







Thursday, May 9, 2013

Advocacy

Everyone has to listen to my negativity surrounding being floxed so I thought I'd take the time to update my readers (all 6 of you) on some positive momentum generated by people like me in an effort to increase advocacy and awareness for the dangerous side effects of FQ's.

The Fluoroquinolone Antibiotic Toxicity Advocacy Group I belong to descended on Washington this week,  assembled at the White House and met with members of the Senate and Congress.  I am so proud of them and wish I could have been able to make it.  Unfortunately, our recent family vacation was planned before I heard about the Washington "rally" and could not take the additional time off to be there.  I WILL be there next time.  Two weeks prior, one of our group's founding members, John Fratti, who is also one of the most severely injured by Levaquin, attended Johnson and Johnson's shareholder meeting to make sure that they were, once again, made aware of Levaquin's adverse side effects.  Not that they actually care but, hey, every little bit counts!  If they cared they'd dump money into research to help us AND lobby for stronger warnings and physician education.

Our FQ Awareness group met with Senator Dianne Feinstein, CA-D and Congressman Rich Nugent, FL-R who both took the time to listen to our collective experience regarding the dangers of these drugs and the need for widespread consumer awareness

Here are some pics and links of our group's efforts:

  






Sunday, May 5, 2013

Mtn Trip 2013

Tons of pictures - had to merge from both our phones.  Awesome trip : )  Springtime Blue Ridge adventure!