Thursday, May 9, 2013

Advocacy

Everyone has to listen to my negativity surrounding being floxed so I thought I'd take the time to update my readers (all 6 of you) on some positive momentum generated by people like me in an effort to increase advocacy and awareness for the dangerous side effects of FQ's.

The Fluoroquinolone Antibiotic Toxicity Advocacy Group I belong to descended on Washington this week,  assembled at the White House and met with members of the Senate and Congress.  I am so proud of them and wish I could have been able to make it.  Unfortunately, our recent family vacation was planned before I heard about the Washington "rally" and could not take the additional time off to be there.  I WILL be there next time.  Two weeks prior, one of our group's founding members, John Fratti, who is also one of the most severely injured by Levaquin, attended Johnson and Johnson's shareholder meeting to make sure that they were, once again, made aware of Levaquin's adverse side effects.  Not that they actually care but, hey, every little bit counts!  If they cared they'd dump money into research to help us AND lobby for stronger warnings and physician education.

Our FQ Awareness group met with Senator Dianne Feinstein, CA-D and Congressman Rich Nugent, FL-R who both took the time to listen to our collective experience regarding the dangers of these drugs and the need for widespread consumer awareness

Here are some pics and links of our group's efforts:

  






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